Thomas Montini , pediatrician, Cultural Association of Paediatricians .
Published Va 'Pensiero # 457
brothers and sisters of children disabled patients often have secondary, both in the eyes of parents and to those of people from outside who, with different roles, helping to give support to the family for the management of disability. First, the family pediatrician. This "invisibility" can profoundly mark their mental and physical growth and requires special attention.
The birth of a child with disability is an emotional burden of suffering and responsibility that irreversibly affects the internal dynamics of the family. Often, even the couple's relationship degenerates into a painful conflict. In this context, the healthy siblings - not considered in their needs - are forced to adapt difficult. They are often charged with responsibility inappropriate to their age and are found only in managing violent internal conflicts: jealousy, anger, fear, combined with a strong bond to her brother / sister with disabilities.
The child who experiences a solitude or a pattern of insecure attachment, constructs an image of the hostile world, not to be trusted. You crystallize in his belief that the internal working models will have to solve their own problems, that others may not be reliable. All this will affect the social and emotional growth and may cause difficulties of adjustment, anxiety and depression.
support interventions, focused on disability, almost never respond the needs of the family, and do not consider those of others. The studies we have are largely devoted to the impact of disability on affected child and its parents, but the experience of siblings is virtually ignored. In Italy there are few studies conducted on the needs of disabled brothers and on small numbers. The Cultural Association of Paediatricians propose to start all over cross-sectional survey using a questionnaire to be offered to siblings of people with disabilities and a normal population of homogeneous age as a control.
For effective support is more necessary than ever to find 'protective factors' that are also targeted to his brothers operators to support the family, facilitate their opening to other social realities, and action to allow the brothers to build friendly relationships with peers outside (sports, school, recreation centers) and parents a restore (operator to accompany the disabled child to school or rehabilitation center or to help him wash).
November 24, 2010
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