Cultural Association of Paediatricians alongside Parent Project Onlus
to facilitate online training on Duchenne / Becker
Rome, January 31, 2011 . He received the patronage of the ACP (Cultural Association Paediatricians), the online training program "Special Duchenne" dedicated to Pediatricians and Community Primary Care, GPs and specialists, made by the association of parents who are struggling against the most severe form of muscular dystrophy that is already manifest in childhood.
"It is important to disseminate information to the care and management of this disease not only for professionals but also for families. Provide tools for families is one of the priorities of the ACP " says Paolo Siani, National President of the ACP, Director of UOC Pediatria AORN “A. Cardarelli” di Napoli .
L’iniziativa, realizzata in collaborazione con M.D.webtv, si compone di alcune video-interviste rilasciate da importanti ricercatori e specialisti che fanno parte del Network dedicato alla Comunità Duchenne. Il programma di formazione tratta, in modo generale, gli approcci terapeutici, i trattamenti farmacologici, le caratteristiche della patologia, l’assistenza respiratoria, le tecniche fisioterapiche, il percorso assistenziale, i centri di riferimento per le malattie neuromuscolari e le attività dedicate alle families.
the Special Duchenne "participated Giulio Cossu, Department of Biology, University of Milan; Emilio Clementi, professor of pharmacology at the University of Milan; Antonio Toscano and Tiziana Mongini , the Italian Association of epidemiology; Fabrizio Racca, the structure of Anesthesiology and Intensive Care Pediatric Hospital of Alexandria Elena Lora , physiotherapist Reference Parent Project Onlus Filippo Buccella , president of Parent Project Onlus.
The development of online training project, which is published www.parentproject.it and www.acp.it , expects to generate a discussion of all the different issues related to Duchenne / Becker.
The Duchenne muscular dystrophy and Becker is a rare disease, the most severe form of muscular dystrophy, that affects 1 in 3,500 males. It is estimated that in Italy there are 5,000 people affected by the condition, for which currently there is no cure but a specific treatment by a multidisciplinary team that has improved conditions General and double the life expectancy.
Parent Project Onlus , is an association of parents born in Italy in 1996 with the aim of promoting and funding research science. It deals with the formation of families affected by the Duchenne disease and the entire community. Since 2002, the Listening Center dystrophy (CAD), provides a free service assistance and training for parents and activities dedicated to specialists interested in furthering. Contact CAD , located in Lazio, Lombardia, Piemonte, Marche, Puglia, Sardinia, Sicily and Calabria, you can call toll free 800 943 333.
L 'Associazione Culturale Paediatricians is a free association which brings together 2500 pediatricians Italian, aimed at the development of culture pediatric and promotion of child health . The main mission is the training of pediatricians . It is also engaged in research and programs that have as their common denominator the health of children and adolescents, the overcoming of inequalities in health, assistance to families to grow the ability to be parents.
More project information can be requested from Parent Project Onlus the number 06 66182811 or visit our website www.parentproject.it
To support the activities: c / c postale 94255007 BCC Aug. 19 IBAN IT 38 V 08327 03219 000000005775
FOR INFORMATION
Press Parent Project Onlus
Stephanie Collet - Tel 349 5737747 / 06 66.18.28.11
ufficiostampa@parentproject.it
Francesca Bottello - Tel 06 66.18.28.11
f.bottello @ parentproject.it
Cultural Association of Paediatricians Press
Cell 349 2806565
ufficiostampa_acp@tiscali.it
Stephanie Collet - Tel 349 5737747 / 06 66.18.28.11
ufficiostampa@parentproject.it
Francesca Bottello - Tel 06 66.18.28.11
f.bottello @ parentproject.it
Cultural Association of Paediatricians Press
Cell 349 2806565
ufficiostampa_acp@tiscali.it